Involvement and campaigning

I’ve made a short video on how to use Zoom for a meeting. (Watch this film by Frances Isaacs here).

Campaigning helps me block out the later stages. Projects keep me challenged.

Don’t agree to meetings that are too early or too late for you. And don’t get left to the end of the agenda, which might make you get anxious. You might ask to go before or just after [...]

I take my own de-caff coffee to meetings. (Read more on John Quinn’s blog here).

Don’t assume others know what you need to be successfully involved – they can’t read your mind. I have a standard list I give to people. (Read more in this book ‘Loud and Clear‘).

If you are invited to travel to an event, ask for what you need. Maybe an overnight or a taxi, or a quiet room. Put yourself first, and be assertive and clear about your needs. (Read more in this [...]

From now on, I’m going to ask for more virtual meetings, or to have events filmed or streamed. These are reasonable adjustments under the Equality Act. (Listen to this Dementia Diary by [...]

I believe that sharing my story, and listening to the stories of others who are doing their best to manage each day, and look for the positives when they can, will help change the pubic’s [...]

Being active and using my brain has helped me lose my aggressive behaviour, and things brightened up at home. Going out and giving back to the community gave me a feeling of satisfaction and led [...]

Ask people to introduce themselves slowly, loudly and clearly, with pauses between people, at the start of the meeting. Often they mutter and skip through!